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Wednesday, March 27, 2013

Home Movie

This one is a little different.  I thought that I would post a video blog entry.  I began to realize that I have almost no recordings of my voice.  So I did this to compare my voice now with Fall 2010.  Then I got the bright idea to show you how I eat. 

My voice sounds different from day to day.  On this video, my voice is much lower in the feeding segment.  I had been coughing all day.  Gerrí suggested that we do it on a different day because she said that yesterday was a bad day for being understood.  I found that it was actually pretty easy to understand.  Some days it sounds like all of the sound is coming through my nose, as if I had a cleft palate.  Every day is a new adventure.

I am using my whiteboard or my iPad more often to help if the other person is just not getting it.  We had the kids over on Sunday night and I ended up using both the whiteboard and the iPad.

Here you go:   http://youtu.be/ELVYVwzZRgs


12 comments:

  1. You are my biggest HERO in the whole world!!!!


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  2. This broke my heart. But it also made me so proud. It reminded me a lot of my dad, the way you talk and the feeding tube. I love that you are sharing your experience for the world and that you still have your great sense of humor. I always knew that you were an amazing man and I will never forget the things that you have taught me, wether you realized it or not. I love you and your family. Stay strong. Thank you for sharing this. -Kristin Eilers

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  3. Kevin,
    I understood you very well, even without the subtitles. You inspire me and you still make me cry. You know that I love you very, very much. And Gerri, I love you very, very much, too.
    -your lil' sis, Linda

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  4. Kevin we are heartbroken about your trials. We love you and pray for you. Love, Rock and Terri

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  5. Kevin and Gerri, Thank your for sharing. It's hard to watch and think about what you are both going through, but it does inspire me. You are both very much in my prayers.Love, Debbie

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  6. Hola Hno. Taylor, I think it's cool that you have a blog :], Rodrigo and I remember you and appreciate you, have a good week!
    Caroll Ramirez

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  7. Hey Kev...We love you so much. Have you thought about seeing if you can get the news report when the airplane went missing? Love Shanny

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  8. Just found your blog. I have been trying to get you on IM but the email address you gave me wasn't recognized by Microsoft Messenger. Good job on the blog...I will be checking in regularly. Stop at the office anytime.

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  9. Bro. Taylor you are so strong ! It's heartbreaking knowing that you have to go through this, but I like that you are still the nice Bro, Taylor like I always knew. :) I miss you and sis, Taylor so much, if you guys ever need anything I'm here to help. :)

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  10. I just want to share my story so i can reach out to others. My mom was diagnosed with ALS (Lou gehrig's disease) in the summer of 2013. She is my best friend and all i have got in this world. And I was scared because when the doctor told me about how deadly this disease is i could not help but cry. She suffered all through the time, she could no longer walk as all her bones were weak, speak or even eat, this were years of torment as i have never seen anything like it or ever been so scared in my life and i wept as the days go by. We tried several drugs like Riluzole, and various therapy that was prescribed by the doctor but it came out even worse as she became very thin. She is 65 years old. I actually thought i was going to loose her after all i have spent. I was in church one day when a fellow in the christian faith told me about a doctor who has a cure and that this doctor had cured a colleague she knew suffered from ALS, i was in shock and recalled the doctor once told me there was no cure, she gave me the doctor's contact and i contacted him and told him all we have been through and he told me about his very effective herbal medicine that treats it permanently, though at that time i did not believe but i wanted my mom to be okay again so i decided to give a try and he sent me the medicine which i gave her as instructed by the doctor. In a month time i was amazed at the improvement and by the second month she was completely okay, during all these times she did not experience any side effects. To confirm all these we went back to the doctor to confirm, he ran all the tests and found no trace of ALS in her again. Today my mom can run, jog, eat and speak fine without any assistance currently she is baby sitting my daughter and till now she is still very strong. If you are suffering from ALS (Lou gehrig's disease) do not die in silence because there is still hope for you. Contact the doctor on (josephalberteo@gmail.com) i am very sure he can help you too.

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  11. I Am Jessica, I want to quickly write on a Powerful herbal cure doctor, who is well known around the world for his cures and help to humanity, This man helped me when i had the Lou Gehrig’s Disease ( ALS ). i and my family tried all possible best some few years back to get a cure for my dying husband who was also an ALS victim, but all our efforts came to nothing on a Friday night when we lost him to death. The same virus came on me some 3 months after the death of my husband, i tried all i could untill i came in contact with DR Camala in 14-6-2014. I went to collect my weekly treatment on the hospital which Dr Camala was invited to inspect some patients, i was upportuned to be inspected by him on his own free will. After the inspection, he gave me his Emails:( dr.camalahivaidscure@yahoo.com ) and his mobile number and ask my eldest son to help me get to him which we really did. We emailed him and he got back to us, in just 3 days of negotiations he sent me some herbal cure medicine and instructed me on how to take them. i remember taken the medicine for just 2 weeks, then i started receiving results. I am happy to say now that for the pass 1 year i have had no symptoms of the sickness and i have been totally and finally cured of ALS with no trace of the virus in my body ( laboratory scan and medical doctors checkup has reveled so) Am so happy and i want to thank Dr Camala for his help on me. i want whoever that is also with this virus to get the quickest and most assured cure immediately through the help of Dr.Camala on
    dr.camalahivaidscure@yahoo.com or call him +2349055637784.

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  12. As a sign of gratitude for how my husband was saved from ALS, i decided to reach out to those still suffering from this.
    My husband was diagnosed of ALS in 2013 and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, he always have trouble swallowing , and he always complain of Weakness of the body . we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and he left the contact of the doctor who had the cure to ALS. I never imagined ALS has a natural cure not until i contacted him and he assured me my husband will be fine. I got the herbal medication he recommended and my husband used it and in one months he was fully okay even up till this moment he is so full of life. ALS has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my testimony.

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